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Last Updated: Tuesday, 07 July 2015

Facilitate, promote and optimize the clinical research for cystic fibrosis

The Cystic Fibrosis National Clinical Research Network’s purpose is to support and facilitate the interaction and cooperation between the many participants or stakeholders involved in cystic fibrosis clinical research. The network was founded in 2009 by “Vaincre La Mucoviscidose”, the “Fédération des Centres de Ressources et de Compétences de la Mucoviscidose (CRCM)”, the “Société Française de la Mucoviscidose”, and the two centers dedicated to the cystic fibrosis.

PNCR supports and promotes the coordination of clinical research for cystic fibrosis in France through:

  •         Clinical trial methodology support
  •         Clinical trial management (set up and follow-up)
  •         Patient recruitment
  •         Patient education and information
  •         Access to the French cystic fibrosis database the “Registre Français de la Muscoviscidose”
  •         Trainings and presentations

The national network allows pharmaceutical companies to go through a central point of contact to connect with appropriate health centers to run clinical trials, and for researchers to implement innovative studies.

The PNRC also works closely with the European Network in Clinical Research (ECFS – CTN) created by the European Cystic Fibrosis Society (ECFS) and operating since June 2008. The European Network has already enabled the deployment of clinical trials in 2009 and many PNRC members participate in its support and management ensuring a close collaboration between the National and European networks.